The Lozano Blesa University Clinical Hospital will host an informational day on April 18 organized by the Spanish Huntington’s Disease Association (ACHE) featuring top-level experts and institutional support
The Aragonese capital will become the national reference point for Huntington’s Disease (HD) next Saturday, April 18. This hereditary and degenerative neurodegenerative disorder affects between 2,800 and 4,000 people in Spain, of which between 80 and 100 reside in Aragon.
Under the slogan «United for knowledge, together for hope», the Spanish Huntington’s Disease Association (ACHE), in collaboration with the Lozano Blesa University Clinical Hospital, has organized a training and scientific update day aimed at patients, families, and socio-health professionals. The event will take place starting at 10:30 AM in the Auditorium of the hospital (C/ San Juan Bosco 15) and aims to raise awareness of a rare, complex, and still poorly understood disease that combines motor, cognitive, and psychiatric symptoms.
Huntington’s Disease, first described in 1872 by American physician George Huntington, is caused by a mutation in the gene that encodes the huntingtin protein. This alteration leads to the accumulation of the mutated protein in neurons, resulting in their progressive degeneration, particularly in the areas of the brain responsible for movement, memory, thinking, and behavior.
The program for the day includes presentations from prominent specialists. The event will be inaugurated by Dr. Javier López del Val, neurologist at the Zaragoza Clinical Hospital and recognized in 2025 among the 50 most important doctors in Spain according to the Top Doctors Awards. He will be followed by Dr. Elena Bellosta, neurologist at the same center and an expert in Huntington’s Disease, and Dr. Eva Gracia Peligero, psychiatrist at the Clinical Hospital and president of the Clinical Ethics Committee of Sector III of Aragon, who will address the basic clinical aspects and neuropsychiatric challenges of the disease.
Dr. Saúl Martínez Horta, head of the Neuropsychology department at CDINC and neuropsychologist at the Movement Disorders Unit of the Hospital de la Santa Creu i Sant Pau in Barcelona, will present the latest research advances and opportunities for participation in clinical trials. The institutional closing will be handled by Ms. Marián Orós, councilor for Social Policies of the Zaragoza City Council, who will highlight the support from institutions for affected families.
Registration is free and can be done through the link https://bit.ly/jornadazaragoza or by scanning the official QR code provided by the organization.
ACHE has called on the media to help maximize the event’s dissemination, both in the lead-up phase and in live coverage (inauguration at 10:45 AM or closing at 1:45 PM) and in possible follow-up reports. The organization also offers the possibility to arrange exclusive interviews with speakers and testimonies from families.
Ruth Blanco, president of the Spanish Huntington’s Disease Association, has emphasized the importance of this event: «It is essential that patients, families, and professionals update their knowledge about disease management and learn about new lines of research that open a window of hope.»
For more information or press accreditation, media can contact Ruth Blanco at the phone/WhatsApp number 671 43 93 33 or via email at contacto@e-huntington.es. The association’s website is www.e-huntington.es.
The event is part of ACHE’s commitment—a non-profit organization integrated into the Spanish Federation of People Affected by Huntington’s Disease (FEPAEH)—to improve the quality of life for affected individuals and their families, promoting research and comprehensive care.
